Provide information and support to people with SDS and to their families.
 

Find others with SDS and develop a database for research.
 

Develop community awareness by promotion and information sharing.
 

Educate the medical profession about this little known symdrome so that children can be diagnosed sooner and given suitable treatment.
 

Continue to raise money to keep the group established, publish literature about the syndrome and contribute to research into the causes and the gene that causes SDS